Policy and influencing change
Kidney disease isn’t a priority for governments across the UK and we want to change that.
We're advocating for kidney patients by lobbying governments and decision makers to change policy and practice to ensure that the estimated 7.2 million people living with kidney disease in the UK have access to the most effective care and treatment, and to make kidney disease a priority.
Kidney disease: A UK public health emergency
A comprehensive review of the health economics of kidney disease in the UK for more than ten years.
The report estimates that the current economic burden of kidney disease to the UK is £7bn with £6.4bn of this related to direct NHS costs; these figures could grow to as much as £13.9bn and £10.9bn, respectively by 2033.
The report shows the stark reality of kidney disease in the UK. It sets out interventions to improve prevention, management and treatment of kidney disease.
Collectively common: the devastating impact of rare kidney diseases in the UK
An independent review conducted in 2025 demonstrating the impact of rare kidney diseases.
The report shows that people with rare kidney diseases face significant diagnosis delays, inconsistent care and long waits for new treatments, with children in particular left at greater risk of medical, educational, and economic disruption.
Time To Act: A New Review of Kidney Health Inequalities
There is still a long way to go to close the unfair gaps in kidney health, access to care, and progression of kidney disease.
Our 2024 report brings together evidence from people affected by kidney disease, health professionals and researchers. It sets out recommendations for the research community and priorities by patients, to move us towards equitable kidney health for all.
Chronic Kidney Disease: An Action Plan for Scotland
The number of people in Scotland whose kidney failure is treated with transplants or dialysis, has increased by almost 60% since 2004. Treating all stages of chronic kidney disease now costs NHS Scotland almost £0.3bn a year and could rise to over £0.6bn by 2033.
Our action plan making a series of recommendations to improve the diagnosis and treatment of chronic kidney disease for everyone in Scotland.
Addressing the mental health challenges of life with kidney disease
Together with Centre for Mental Heath, we commissioned into the mental health impact of kidney disease on patients, recommending urgent improvements to the current model of care.
The report outlines the type of support needed to improve outcomes.
We're working to influence change based on the recommendations in the report, from Ministerial level to service providers.
Changing the future for chronic kidney disease in Scotland
We're calling on the Scottish Government to tackle kidney disease as a core priority and support a national strategy to combat chronic kidney disease.
Based on the recommendations of our report, it reveals that change is urgently needed as the number of kidney patients is growing fast.
The Scottish Government has responded positively to our policy report and has committed to do more to support kidney patients in Scotland.
Chronic kidney disease and prevention: Harnessing the potential of early intervention and disease management
A report to spell out the urgent steps decision makers need to take to improve the prevention and early diagnosis of chronic kidney disease (CKD) in England.
Produced with input from clinicians, scientists, academics and patients, the new report identifies specific ways in which early diagnosis, monitoring and management of kidney disease could be improved.
Campaign with us
Kidney disease isn’t a priority for governments across the UK and we want to change that. Add your voice and help us advocate for kidney patients and campaign for improved kidney services for everyone affected by kidney disease.
Got a question? Get in touch.
For more information or if you have any questions, get in touch with our policy team: