- All
- Acute kidney injury
- aHUS
- Alport syndrome
- Anaemia
- Andy Cole Fund
- BK virus
- Blog
- Blood pressure
- Calciphylaxis
- Cancer
- Case study
- Chronic kidney disease
- CMV
- Collaboration and partnerships
- Coronavirus
- Corporate partnership
- cystinosis
- Cystinuria
- Diabetes
- Dialysis
- Focal segmental glomerulosclerosis
- Fundraising
- Health Equalities
- Heart disease
- HUS
- Idiopathic nephrotic syndrome
- IgA nephropathy
- Kidney health
- Kidney stones
- Lupus
- Mental health
- Nephrotic syndrome
- NURTuRE
- Paediatric
- Patient Stories
- Podcast
- Policy
- Polycystic kidney disease
- Research
- Transplantation
- Uncategorised
- Volunteering
Was my bladder cancer linked to BK virus and kidney disease?
Receiving a kidney transplant can transform a patient’s life. However, it’s not a cure and does not necessarily come without complications. That was certainly the case for Tim Tavender, a 51-year-old marketing professional and amateur stand-up comedian from Southampton. Shortly after a kidney transplant in 2015, Tim’s health deteriorated due to BK virus and, subsequently,…
Fighting hereditary kidney disease, 20 years after uncle died on Christmas Day
A 27-year-old man from West Yorkshire is sharing his family’s fight against kidney disease, two decades after his uncle’s death. The hereditary condition continues to devastate their lives, as his mum spends this festive season waiting for a second kidney transplant. Jack Senior, from Huddersfield, says: “Our family finds it difficult to enjoy Christmas because…
Looking after your kidney health over the festive period
For many people, a highlight of the festive season and something to look forward to, is celebrating with family over a special meal, a works office party with colleagues, or Christmas drinks with friends. For people living with kidney disease, Christmas can be a very different experience and needs some extra planning. We’re sharing some…
What if on Christmas Eve, it’s not sleigh bells we hear, but the alarms on Bella’s dialysis machine?
Six-year-old Bella is desperate to live a dialysis-free life, having been diagnosed with kidney disease four years ago. Her mum, Nathalie, describes what life is like for their family, as Bella continues to wait on the transplant list for a new kidney this Christmas. A message from Bella’s mum, Nathalie Christmas is coming and my…
SGLT2-inhibitors: a new era in protecting kidney health?
A type of medication called SGLT2 inhibitors could help people with chronic kidney disease (CKD) stay well for longer. We spoke to our funded researcher, consultant nephrologist Dr Dominic Taylor from the University of Bristol to hear more about SGLT2 inhibitors and his study into getting access to this new treatment. Related links Taking control…
Kidney disease, diabetes and sepsis have put my life on hold
A service account manager from Cheshire has spent over two years waiting for a simultaneous pancreas and kidney transplant (SPK), which she hopes will free her from a strict dialysis routine and reduce the impact of diabetes. Rachel in hospital The impact of multiple health conditions Rachel Stuart, 33, is one of many kidney patients…
Parliamentary Launch of Rare Kidney Diseases Report at House of Commons Roundtable
This week, we hosted the parliamentary launch of our new report on rare kidney diseases at a high-profile roundtable event in the House of Commons. House of Commons Roundtable The event was hosted by Stuart Andrew MP, Shadow Secretary of State for Health and Social Care, and brought together key voices from patient and clinical…
Vote for the Make Your Mark campaign film in the Smiley Charity Film Awards
We’re excited to share that the short film ‘Is it inside you to save a life?’ from the Make Your Mark campaign, as part of the Robert Dangoor Partnership for Living Kidney Donation, has been entered for the Smiley Charity Film Awards 2026, helping to shine a spotlight on the life-saving impact of living kidney…
Former easyJet boss says the sky’s the limit after kidney donation
When his brother Per suffered kidney failure in 2008, donating a kidney was an easy decision for former easyJet CEO, Johan Lundgren. That transplant transformed life for Per, as he was freed from dialysis, while Johan has continued to thrive with one kidney. Johan and Per sat down with us to discuss the life-changing impact…
SMC approval of mercaptamine offers new hope and choice for people living with cystinosis in Scotland
In a landmark decision, the Scottish Medicines Consortium (SMC) has today (10 November) accepted a new treatment – mercaptamine (brand name Procysbi) – for people in Scotland living with cystinosis, a rare disease affecting about one in every 100,000 to 200,000 newborn babies. The decision marks a pivotal moment for people – mainly children and young…